Category Archives: Motivational

Independence sometimes needs some chewing gum a paperclip and duct tape

I wonder what he would charge me to consult
I wonder what he would charge me to consult?

 

I was born with cerebral palsy I’ve been in the chair for as long as I can remember. I’ve needed help every day since that day I was born. Independence is something that has come little by little. I went to college and found a way to get it done, with lots of help from others of course, but I got it done.

I spent years looking for a personal assistant. Maybe closer to a decade. Last October, I got Jane. Having her has been a major adjustment. I can finally get out and go,(not whenever I want to but almost.) I have someone to stay with me. Which allows my parents to have much more of a life of their own. I’m learning to the shop for groceries, and now I’m learning what it’s like to be able to make my own choices. It’s an amazing thing really.

All that said, I still live in my parents house. It has a few things that are built just for me, like a big bathroom and sink I can roll under. For the most part however, it’s their house. Appliances are located in convenient places for them. Which in most cases means they are too high for me to reach. This is okay for most things, a guy with very limited motor skills, probably shouldn’t be attempting to cook a meal on the stove. That said, having the ability to microwave a snack when I got hungry and no one else was around, would be nice.

Over the last year, I have been extremely fortunate to have an independent minded woman pointing these things out of me. She’s constantly thinking of ways I can improve my situation. A major addition to my living environment would be a microwave. When I started thinking about it, all of these wrinkles begin to happen. A microwave is great but only if I have access to food to put in it. That means I’ll probably need a freezer somewhere in my room as well. My room is nice but it’s very limited in terms of space and I don’t even have that much stuff.

So I am looking around  trying to figure out where I could put a freezer and a microwave that would be accessible to me. Then I start thinking about how I could get the food from the freezer to the microwave and out of the microwave without making a huge mess in very limited space, that someone else might have to cleanup. All of these thoughts have me wondering if there is a reality show out there that specifically designs spaces for people like me, to help us become more independent? If there’s not there should be. There’s one out there for everything else. (there is one about building custom epic tree houses, those guys are insane).

My point with this post, is that in my case becoming independent has happened by baby steps. it’s painfully slow, And in the case of the microwave and freezer, trying to figure out how to make it work, in a place that’s not really designed for it, is a daunting task. I know it  will happen for me. Sometimes it feels like I will need a team of MacGyver’s to make it happen. (that’s want a mile time favorite shows, just an FYI.) Has anybody out there ever attempted what I am talking about, and do you have blueprints?  Comments welcome. Independence is worth it, but I don’t think it ever comes easy.

Comments are welcome

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You’re going down Monday you can’t win

Anybody else have a plan for world domination?
Anybody else have a plan for world domination?

Even though I’ve never had a  day job, I struggle with Monday just like everybody else.  As I get older they seem to get worse. The best way I found to deal with them, it Is constantly reminding yourself that you are in control and it’s going to be a good week. You have no control over what goes on around you. Just make up your mind to have a good Monday whatever happens. Having a minion around also helps. Now back to devising my plan for a wheelchair themed amusement park. I need some help figuring out the rides, any ideas?

 

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Be thankful every day it won’t hurt a bit

Easier said than done but it's the truth
Easier said than done but it’s the truth

How thankful are you for what you have? Seems like a weird question I know. I don’t know about you, but it’s easy for me to get hung up on what I don’t have, or what I’m missing, instead of thinking about how blessed I am, I have a friend in the hospital right now, dealing with some very serious issues. Issues that you wouldn’t think about having to deal with in your 30s.

I have another friend who fights through pain everyday, and does it with  smile. I have a wheelchair yes, but in all other aspects of my life, including my health, I am extraordinarily blessed. It’s very easy for me to lose track of that. It takes some serious wisdom and patience to learn to be content with where you are in life. No matter how tough your life is, you probably have something you can be thankful for. I have learned that if I don’t reflect on what I’m thankful for on a regular basis, the pressures and darkness of everyday life can overtake me, Today I am thankful for being healthy. I’m also thankful for good friends and family who I know love me. What are you thankful for?

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Being the best me I can be

How could you be better?
How could you be better?

 

 

I have had it pointed out to me several times over the last year that the way that I think about things could maybe use a little work. I think that’s probably true for all of us. “Nobody is perfect” if you stop and think about it, you can probably think of some aspect of your life that needs work.

Whether it’s your attitude, your communication skills or the way you interact with others, we all need work. In my case, I usually don’t perceive that I could be better a person and In a particular area until someone points it out. I think we all have that person in our lives who can point out our flaws in a way that we can handle and not be offended.

In my case I tend to have issues not seeing the big picture. I struggle with the idea that it is not always about right now. Take this blog for example, I would love to get paid for doing this. It’s probably not going to happen but I would love it. More than likely doing this blog Will eventually lead me to something else in the future that could be my next step. I may never be paid for doing this but I might develop a skill that will be useful in my next job.

In this case I’m using making money on the blog as a way to illustrate other similar situations I’ve struggled with recently. It took a very special person in my life to point out that I wasn’t focused on the future as I should be. If anyone else had said that to me I probably wouldn’t have taken it well. Instead I have decided to change that aspect of myself for the better. It’s hard to admit that I don’t know everything and that I’m not always right when this happens. That said, every time I’ve listened and make the effort, it has paid off for me in the long run.

What would you change about yourself to become better?

 

 

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You got this just don’t sneeze on anyone

Easy to say harder to do
Easy to say harder to do

I’ve been sick this week.  Nothing major, just want those colds  that sucks all your energy and makes you want to sleep. Today was my day off so I slept extremely late. The rest of the week I’ve had work to do and have literally had to make myself get up. I saw this picture and it reminded me of Dr. Leigh. 

It didn’t matter if you were sick or tired or had had a bad week. If you showed up for something she expected you to work. I was in a wheelchair and she didn’t cut me any slack. Her attitude has served me well as I’ve gotten older, and I have had more and more days where I just don’t feel particularly good. Some days you need to take a break and rest but I have noticed that when I push through what I need to get done, regardless of how I feel I actually feel better because i’ve accomplished something. If you are struggling at work while reading this, just remember, the weekend is only a few days away.

 

 

 

 

 

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Smart people make mistakes every day

It's hard to see anything clearly through that
It’s hard to see anything clearly through that

 

I believe humans make bad decisions and mistakes, simply because we are not in the right frame of mind to handle what is placed before us on a given day.

Bad days are going to happen, no matter how fabulous your life it is. On a bad day, whether you realize it or not your judgment is probably clouded.

The main key to not doing something boneheaded is being able to identify when you’re not in the appropriate mental state to make a big decision. Today is the one year anniversary of the murder of a very close friend of mine. You can read more about her here Today, I’m aware that I am in no mental shape to make any decision more important than what I’m going to eat next.

If I had a major decision to make today, I’d do my best to put it off till tomorrow, or maybe even next week. This is why people make mistakes when they’re drunk(Think back, you’ve probably made at least one). We are smart people, but even a little emotion has the potential to drastically affect our decisions. You’ll be amazed how much better your decisions turnout when you think them through with a clear head.

Bad day’s will happen. When they do, Focus your energy on getting through them, and improving your outlook. Don’t worry about much else. You will thank yourself in the morning. For more info on this topic read this

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My wall has wheels

Walls protect us but they can also keep opportunity out
Walls  are easy to build and hard to take down

I’ve seen more  damage  done buy low self-esteem and  doubt then anything else.  I’ve had my fair share of both. I learned during my struggles of getting a broadcasting degree that you can read about right here and here, that if you don’t believe in yourself, very few other people will. I’m not saying you won’t have supporters, you will but you will have lots more critics. They are never nice and they almost never have your best interests in mind. We all struggle, and it’s always hard. If you are struggling with low self-esteem or doubt it’s even harder. The past is called the past for a reason. It doesn’t matter anymore, and you can’t change it. You were put here for a very specific reason. You have skills and abilities that no one else on earth has.

The walls that you have built can keep you from finding your true potential. You are unique and special. Whatever has happened to you, has given you prospective that no one else has.

I have a wheelchair. No one sees the world like I do. Other people in wheelchairs have had different life experiences than me and almost certainly see the world differently than I do. My chair is an obstacle. A wall for me to get over. In the process of life it has made me strong, give me a will to fight, and not allow it to conquer me. Whatever the reason was that you built your walls, it’s time to take them down and start working towards being the person you want to be.

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Someone is always watching put your game face on

Maybe without the crazy eyes
Maybe without the crazy eyes

 

I spent the better part of the day at doctors office. I have gone to the same doctor for the better part of 20 years. Recently I decided it was time for a change. There was nothing wrong with the doctor I had, it just sort of seemed like he was going through the motions. Trying to get people in and out as fast as possible.

I don’t know about you guys but when I don’t feel well, or have a problem serious enough to seek out a doctor, I don’t like to be rushed, and I don’t like to be treated like a number. First visits to a new doctor are always a pain. I showed up a half hour early, because I knew there would be paperwork, and there was, lots of it. I spent over a half-hour filling out forms, (well Jane did but I had to answer her questions). Then when I was done, I had to wait 20 more minutes just to go back to the little room. Then once I got there, I waited another half hour.

At this point, I’ll freely admit to being a little frustrated. However, I was also intrigued. I could hear the nurses outside the door laughing and joking and even having fun with other patients. Something different was going on here.

Finally the doctor came in. He shook my hand(that’s kind of a big deal. If someone doesn’t know me, they don’t usually even attempt it.) Then, he sat down, and begin to talk me about my situation. We talked about other specialists who might be of help to me, and treatments to improve the quality of my life. This lasted about 20 minutes.

I’ve had a few doctors in my time. I’m not sure that I’ve ever had one ask how he could be of service to me. At one point he said “I’m really looking forward to working for you”

This brings me to the reason I am writing this post. I delt with a man today, who  obviously takes pride in his job, and wants to be of service to his patients.  That’s rare in today’s world.  when you see it, it’s very refreshing. By the end of the visit I didn’t even care that I had spent more than two hours in there.  His good attitude changed mine.

It reminded me that whatever I do, I need to do it with a smile, not only s smile, but genuine enthusiasm. You probably aren’t going to always like what you do, but if you do it like it matters, people will notice and doors will open. I certainly noticed today.

 

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When in doubt go all out

Truth
Truth

 

Life is too short for regrets. I have exactly 3 in my 36 years of life. Two of them I had no control over and could do nothing to change the outcome.

The third has to do with going from a manual wheelchair to a power chair when I started high school. If I were still in a manual chair today, I would be in so much better shape and there’s no telling what I could have done physically. At the time my parents were afraid I wouldn’t be able to get to my classes on time, and consequently pushed me to make the change. As a lazy 14 year old kid, all I knew  was that this would allow me to be even more lazy. I had no idea what the consequences would be, and even if I had, I probably wouldn’t have cared. I care now. Every time I see one of those extreme sports wheelchair guys I think” I could have been that”

Anyone that knows me, especially women, will tell you I speak my mind. I’ll say I love you often and I’m not afraid to be softhearted, because I don’t ever want to regret something I didn’t say. One woman in particular, (I’ll freely admit I’m very sweet on her.) For you young kids out there,that means I’m WAY into her) calls me  mushy” man. “she says I get” a sound” in my voice when I talk to her.

I never apologize for that. Life is too short to hold back.  In everything that you do, go all out. You’ll probably have to step out of your comfort zone, and you may get hurt, but at least you won’t regret what you didn’t do.

 

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Work and wait and try not to drive yourself crazy

I have to remember this every day
I have to remember this every day

I’m a hard worker. I work everyday on something. Lots of the work that I do doesn’t pay me, and I don’t get a pat on the back for it. There’s so much that I want for my life. When I was in my 20s I knew I needed a personal assistant. I searched for someone who could do the job, and a way to pay them, for more than 10 years. I now  have that. I have more independence now than I’ve ever had in my life. I had to wait a really long time to get it. Now I want to travel and speak and spend time with friends that I love. I want it now, yesterday.

I ask myself sometimes why I have to wait for what seems like such a basic thing. I don’t know the answer to that question right now, but I do know there’s probably a good reason, and the timing needs to be right. I know what I want will come when the time is right.

Never doubt your desires or ambitions. Do the work and wait. The waiting is the hardest part. You may not get exactly what you want, but what you get will probably be exactly what you need.

 

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