Don’t be alarmed it’s only a wheelchair

It's only a chair it doesn't  have to be
It’s only a chair, it doesn’t have to be

 

I got a semi full-time personal assistant in October.  since then I’ve been making a to-do list.  This list has to do with getting things done, that I never really have had the mobility or the help to do before.

One big thing on this list, is getting an agent. I’ve been speaking whenever I can for a very long time, but I’ve never had someone to represent me. Someone to work toward my  interest. If you talk to anyone in show business, one of the first things they say to you is get an agent. I decided that it was time.

 

I’ve never had experience with this sort of thing. I wasn’t even sure where to start so I called an agency here in town and told them that I was interested in seeking representation. To my surprise, they told me I should come in and see them. We set appointment for the afternoon, and I begin putting things together to give to them. The main piece is the PDF you can find by going to the link below.

JamieJordanOnePage2014

It has everything you need to know about me all at a glance. (well except for this blog I need to fix that) the second was a glowing recommendation letter from the last place that I spoke.  I was ready, I was going to take these people by storm.

I showed up a half hour early to look the building over for the best way in and such. As I’ve said before, you have to do a little extra prep being in wheelchair then a normal person would. As Jane ( that’s the semi full-time  personal assistant’s name) and I drove around the building. we realized that there was no accessible entry.

Before you get upset, let me just mention that this sometimes happens, and is just part of Life in wheelchair. We park in the parking lot adjacent to the building, so close that I can actually see the people inside. I call them and say that I have a 4 o’clock appointment but there is a small problem, I can’t get into the building.

First, the woman on the phone says to me. How wide of a door do you need? I say at minimum 28 inches.  For the next five minutes people inside frantically measure every door. Finally the woman on the phone says we think we can get you in the back but there’s a step. They have two men in the building that are willing to pick me up. To this I reply that my wheelchair is electric and it weighs about 600 pounds with me in it. I could just see these two men hurting themselves trying to pick the chair up and me somehow being responsible for that. After some thought she agreed. She asked me to hold and I saw the people in the building meeting again trying to figure out what to do.

After a few minutes the voice comes back to me and says that the woman I was scheduled to meet with, will come outside and meet with me.

Remember when I said that I showed up early? Even with all this confusion, it was two minutes until 4 o’clock, our scheduled meeting time.

The woman comes out, I can immediately see that she’s flustered and embarrassed and  doesn’t really know what to do. At this point I decide that I need to do my best to make her feel comfortable. I get out of my car shake her hand, give her the stuff I brought and begin to tell her about myself.

The whole time she seems completely out of her element, she tells me that an agent is not an manager and that she sits in our office and waits for her phone to ring. If someone needs a service like a motivational speaker, she matches the person on the phone with her clients  skills. She was very clear that she was not a manager. She said she wouldn’t actively spend the time seeking out work for me. Agents didn’t do that. This may be true, but I have met some agents not in my area that did seek out work for their clients. The way she said it, almost immediately after I got out of the car, felt like her best effort to send me somewhere else. I felt she was so uncomfortable from that point on, that she was just trying to get me out of the parking lot. I said what I had to say, and asked her to look over my stuff. She said she would, and then she said it was so hot outside that she couldn’t focus. I’m sitting there, having no problems focusing. I shook her hand again, and she began to walk away, saying it was hot, and she needed to get inside. I let her walk a couple steps and then said ” aren’t you going to need a way to get in touch with me?”

She hadn’t taken my number at that point and I could see she wasn’t going to. I had provided other ways to get in touch with me in the paperwork I gave her. My point  was to give her the best way to get in touch with me. I would think that would be a first priority for an agent.

Now think back to the beginning of this post. The fact that I couldn’t get into her building was a minor problem. That’s just something that comes up when you’re me. What I want you guys to see in this story, Is her reaction to me.

Our 4 o’clock meeting lasted less then five minutes. I was pulling out of the parking lot at 4:05. Why? The answer is, I made her uncomfortable.

I’m not upset with her. I’m just trying to make the point that I believe this is the way that 98% of population reacts to someone like me. It’s why  I do everything I do. No offense to Howard Stern, but I want to be the king of all media. I want to be on radio and TV. I want to write blogs, do interviews, and basically make a living being me. The reason for this, is that I want to show people that my issue, called a wheelchair. Is no different from issues that normal people deal with every day. I’m just a guy. Extraordinarily funny and gifted maybe, but still just a guy. The next time you see a person who is different from you don’t be uncomfortable, if you are not they won’t be either. It’s just a difference, be open, ask questions. You maybe shocked. because they’re actually willing to answer them.  Life is too short to be uncomfortable.

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I like games and I’m uncensored

We talk about video games... Sometimes
We talk about video games… Sometimes

 

It occurred to me that before finding this blog you may have never  heard of me. So it would make sense to talk to you about other projects that are near and dear to my heart.

One of those projects is Gaming Uncensored. A podcast of mine that has been on the air for more than 10 years. It started as a college radio show at West Texas A&M. To learn how I got started there, check out This post. When we started, the idea of a radio talkshow that was centered around videogames scared a lot of people who were in charge at the time, We heard things like “you can’t talk about video games for two hours with no music, no one will listen to that. Even the morning show has music. It only works for the sports show because people love sports” the scary thing about these comments, was that the radio station known as 91.1 “The One” was a student run radio station.

The stations for your generation
The station for your generation

 

These comments came from people our own age.  Thanks to Dr. Leigh  and Randy Ray ( he’ll get some love in a later post) we got on the air. I remember having a conversation with the program director at time, who is still known to this day as Mad Dog ( he has a real name but mad dog is much cooler, so where going with that). The conversation went something like this. Mad Dog: :this will never work you have to play music. Me: ” dude, we won’t suck, just give me six weeks. If you don’t like it take us off the air” after that conversation, the show ran for two years, we won numerous awards and ended up in the local papers several times. When my cohost Tommy graduated from school and moved to Memphis Tennessee to start his new life, we didn’t want to stop so we decided to do the show as a podcast from that point on. We had been running  the podcast side-by-side with the radio show from day one. (we didn’t think a two hour radio show was enough, we may have an unhealthy need for attention) when he moved we went to podcasting full time. We didn’t know it then, but according to some of our listeners, we were the first podcast out there devoted to videogames. There were literally, 12 podcasts at that time, and iTunes didn’t have a directory like they do now so, it’s not hard to believe.

We are still doing our thing 10 years and over   450 shows later. We don’t do it as often as we would like, but we’re still here. You can get to the website by clicking on our logo above, or you can stream us on stitcher radio right Here.

Gaming Uncensored it Is one of the most worthwhile things I do with my life, I have a great friend and partner in crime in Tommy. No matter how busy we get… Or how much time passes between each show. We continue to do it because we love it, and probably always will

 

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Have wheels will travel

It can be done, just not whenever I want
It can be done, just not whenever I want

 

A man on the wheels has to take a vacation every once in a while. I really like to travel. Obviously being in a wheelchair makes things a bit more interesting than your average person. I recently spent the weekend in Austin Texas seeing my sister. I had both minions with me as usual. A guy in a wheel chair has to do things a bit differently everywhere he goes. On vacation even more so. Here’s an audio recap of my vacation. I work really hard to stay positive on this blog. If I seem a little down in this audio, it’s because sometimes you want to do something and you just can’t.

No matter what your issue is, no matter how long you have it, sometimes you just want something you can’t have it at that particular time.  That’s hard but you can’t dwell on it. In this audio I wanted something I couldn’t have, and I wanted to share with you guys. It’s great to be me, But this is a reminder that I have struggles just like you.

 

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Life is a journey I’m glad I have wheels

It's Your move
It’s Your move

 

 

 My life isn’t what I want it to be right now. I get frustrated some days because I live with my parents, and have been struggling to accomplish my goals in this life – like finishing this book. I have to remind myself that most people are in this same situation.

People have been asking me what my goal is with using the standing frame. I don’t know what the “goal” is, it just seems like a step in the right direction. It’s not been an easy step. It’s been really hard. As a matter of fact it’s been the most painful and mentally challenging things I’ve ever done. Painful to the point that more than once I’ve thought that I might black out because my body didn’t want to do what I wanted. People have asked what the benefits to this kind of training are. If you asked me if getting up in the standing frame twice a week was something I wanted to do, the answer would be, “no”.

But there are some things that we do because it makes us a better person. I’ve taken a lot of physical pain during this training. It may make me mentally stronger, it may make me physically stronger, but either way it will make me stronger, and that is worth the pain.

A lot of people in this day in age get hung up on their struggles. They look at their own situation and say, “Look at how tough MY life is!” They are willing to tell anyone who will listen about their personal struggles. Someone is always complaining about their childhood or their bad day from last week or how their cat threw up on the carpet this morning, which ruined their whole day, etc etc.. We all have stuff that’s happened. There’s nothing wrong with sharing your personal stories with others. Personal stories help to connect us and open us up to others emotionally, but the people that are constantly complaining about woes on a day to day basis need to re-evaluate what is happening in the life around them and either make some positive changes or look at things in a different way, so that the positive can be found no matter what the situation.

So when I’m in that standing frame suffering pain just from standing that most people would feel after running 10 miles or so, I get pissed off upset too.

My physical therapist says I am much harder on myself than he is on me. He deals with a lot of people who come in complaining of pain and if they have to endure pain to make the pain better, he says most people aren’t willing to do that. Most people aren’t willing to deal with pain management or soreness to self-improve.

I didn’t get to the point I wanted to get to in the standing frame this week. I was still too sore to sleep last night because of my efforts, but I wanted more success still.

There are a lot of people willing to complain, but are they willing to make the changes and do what they need to do in order to make their lives better?

The standing frame is not going to allow me to get a job or magically allow me to become more independent, but it is something I can do to make my life better. I feel that if I do this, there are other doors that will open if I take the initiative. This is something available to me and within my power that I can do as I wait for those opportunities to open up. I have no clue what those opportunities are and I still spend too much time on a daily basis worrying about where I need to be, but I can’t just dwell on that. I have to be doing something to improve myself. 

Update

Most of this was written a couple years ago and I still feel the same way. If you are not happy with the direction of your life, then you have to do something to change it. I’m not saying quit your job, or leave your spouse. I’m saying that every small step in the direction that you want to go gets you closer to your desired destination. I’m not ashamed to admit that there is a donate button on this blog. It’s there because I’d like to be able to pay Evie what she’s worth, as well as get myself in a better financial situation.

 

I don’t expect, millions of dollars. The donate button is really an illustration of what I’m talking about here. I’d like to get paid for motivating and entertaining you, so I’ve put up a donate button. It’s a small step but it gets me closer to what I want. I’ve also decided that I want to speak more often professionally. To help with that process, I’ve started working on getting an agent. Again, it’s a small step toward getting me closer to my ultimate goal. Are you ready to take a step?

More About the standing frame

Image can be found here

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Someone truly inspiring sacrifices for all of us

When I’m writing for this blog, I try and find a cool picture to go along with it. I learned long ago people pay much better attention when there are pictures. I was looking for a picture of a wheelchair that the Terminator might use, and I found this.

Yes please
Yes please

I talk about  inspiration a lot.  Things like this are what inspire me,  Do me a favor and check out the full story right here. It is well worth your time.

I would also like to thank Corporal Joshua Hoffman for his service to the United States.  You earned that ride sir. That’s true inspiration folks.

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When I lived on Sesame Street Mondays never sucked

I’m old enough to admit that when I was a little kid I watched Sesame Street almost every day.. We had three channels, and characters like Dora and little Einsteins didn’t exist. Even today sesame Street still affects me. I found this and decided it was great for a Monday Post. Monday sucks for a lot of people, I thought this video might start you off on the right foot I’ll talk about my love of all things Dave Matthews in a future post. For now happy Monday everybody.

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If you run into me it doesn’t count

I’ve noticed every time I’m out in public that people seem to have a real fear that I’m going to run them down. Parents discreetly guard their children when I’m around. The kid has absolutely no fear of me, but the parent apparently sees me as death on wheels. As a person in a wheelchair you learn at a very young age that if you want to be well-liked, it’s probably a good idea to refrain for mowing people down.

I’ll admit, I’ve met some people that probably deserved it. I may have even wanted to, but I never have, (on purpose anyway). Driving a wheelchair is kind of like driving a car. I have had serval people back to me because they didn’t realize I was behind them. I can’t be held responsible for that right? If I were a bit more hard core as a person I might be able to make my chair into a money making machine. How would this? By renting myself out for hire. I talk more about it right here

I’d probably make a million

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Life is hardcore but you are the Terminator

Let’s get right to the truth. There are aspects of your life that are going to suck. You wake up, and your teeth are all grungy and your breath stinks. Everybody’s breath stinks when they get up. Everybody has to brush their stinky teeth. It sucks. Nobody likes to spend time doing this little task, but we all have to. And this is just one of the 15 million little things about your life that is going to suck.

Personally, the suckiest thing in my life is that I have to brush my teeth. Just kidding. My sucky thing is the obvious one.

Yeah.... all this...
Yeah…. all this…

 

Image curtsy of https://ldnk.wordpress.com/2013/11/19/wc-part-management/

But really, we all have bad days but you can’t allow it to take over and own you. Life also has really awesome things too. Like when your teeth are freshly brushed and you can sweep your tongue along them and not taste grimy-ness. Many people look to their children as the most joyful part of their life. (Maybe your kids can also bring you stress, but see how you can use the love of your kids to uplift your spirit?) Maybe you have a good job that provides for you and despite the stress that it brings you can be happy about the security of employment.

Bills: Another Sucky Part of Life

Everybody has bills. I have bills and I don’t even have a job! Well, not a conventional one where I know when I’ll be paid and how much. Is it stressful? Not really.

I feel like people get too wrapped up in stress about money. We want to live beyond our means. We want the newest technology with the white ear buds. We want the phone with the bazillion available apps. We want the designer clothes and the nice shoes and the nice handbags and the cool cars with the GPS built in and the electric everything, but we can’t always afford it. I’m not an accountant or a specialist about finance, and I’m not going to lecture you about getting your finances in order, but if I can say one thing about responsible spending I would say live below your means.

When the new iPad tablet came out, I really really wanted one. I couldn’t afford one with my income, so I didn’t get one. I waited. A couple of years passed, and I was telling a friend of mine about how I still wanted this gadget. He happened to have a Samsung Galaxy Tablet that he wasn’t using, and sold it to me for $150, a price within my means. I had to settle for something that was different than what I had in mind, and I had to wait for 2 years to get it, but I’m happy that I didn’t use a credit card or some other type of loan to put myself in debt and amount more stress.

Maybe you’re already in debt, as many people are, and it’s wreaking havoc in your life already. I read a report from 2012 that stated that 70% of married people have money problems. Money is also cited as one of the top problems that couples argue about. There’s no doubt that money can bring on a great deal of stress.

 

Can I get an Amen?
Can I get an Amen?

Image Curtsy of http://www.slideshare.net/

 

If you’re swimming in debt, it’s a problem that you can’t ignore. If you are stressed because you’re not pretty enough, smart enough, or tall enough, you should ignore that, and focus on your positive traits. But if you are stressing about bills, you have to address the problem. Begin fixing the problem areas where you can, but remember that you can’t change what’s been done in the past. This may help you to release some of the guilt and stress so that you can enjoy your life.

 

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I have two Little minions that love to ride on my chair

I recently took my two nieces to see the minions movie. I love the movies in the despicable me franchise, I’m not ashamed to admit it. If you really want to enjoy them you have to take kids. I’m so thankful for my two nieces every day. They have changed every aspect of my life. They even changed what I consider a dirty word.

I Love having my own minions. That said, it’s nice to send them home to their parents after I’ve had a little fun with them.

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I’m smart most of the time

Confession time

I play  the lottery. Most of you are like yeah what’s the big deal?”

I consider myself to be really smart with my money.  I have to be since I’ve  never had a 9-to-5 job. I talked about that in a previous post Here I have been reading a book the deals a lot with positive energy and managing your moods  on a daily basis. When I’m holding that ticket in my hand, it truly affects my moods until the drawing. I daydream more and think, what if. We must all do that or the lottery would make any money.

 

Yeah....I know better
Yeah….I know better

The truth is it’s one of the worst things you can do with your money. The odds of winning are astronomical. Every time I Play I tell myself “someone has to win, it might as well be me.” I suppose people do win. Thing is I’ve never met anyone that has. That what if feeling is very powerful. Now that I’ve become an adult, I don’t have that feeling as often as I did as a kid. That’s very sad to me. I honestly believe the most people have stopped dreaming and it takes every ounce of energy they have just to get through the day. That’s an awful way to live your life I’m pretty sure it’s not what God intended. If you have something that allows you to dream, I Say keep doing it, as long as it’s not a harmful to you or those around you. I’ll probably never win. I have Dave Ramsey yelling in my head as I type this, and I submit that he’s right. It’s a waste of money. I say if spending a couple bucks every so often helps improve your positive thinking it’s worth wasting the money. Just don’t tell Dave.

 

Thanks to http://giphy.com/search/finger-wag for the use of their graphic

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